Support and Resources
Managing a genetic disease is a lifetime commitment. From diagnosis to treatment, our dedicated team of professionals is available to provide disease education and help address your patients’ needs, including assistance with health insurance issues, all free of charge.
CareConnectPSS, personalized support services for patients, represents Sanofi Genzyme’s more than 35-year commitment to supporting the rare disease community. CareConnectPSS is designed to support each patient’s unique journey.
Our range of support to help patients managing living with a rare disease:
Access to these and other services is voluntary, and your patients are not obligated to begin treatment if they contact us. You and your patients make all treatment-related decisions, and most importantly the privacy and security of their personal information are always protected.
The program is not valid for prescriptions eligible to be reimbursed, in whole or in part, by Medicaid, Medicare (including Medicare Part D), or other federal or state programs (including any state prescription drug assistance programs).
Patients can download the enrollment form or call 1-800-745-4447, Option 3 to learn more about the program and application process.
*The CareConnectPSS Copay Program is available only in the United States and cannot be combined with any other rebate/coupon, free trial, or similar offer. Copay benefits are not transferable. This program assists patients with their out-of-pocket drug costs for their prescribed Sanofi Genzyme treatment only and does not cover or provide support for the cost of MD office visits/evaluations, nursing services/observation periods, blood work, x-rays or other testing, premedications/other medications, Epipens, transportation or other related services. No claim for reimbursement of any out-of-pocket expense covered by the CareConnectPSS Copay Program may be submitted to any third-party payer, where public or private. Sanofi Genzyme reserves the right to make eligibility decisions, set program maximums, and rescind, revoke, or amend this program without notice.
The Cerdelga support program has been designed by Sanofi Genzyme to help educate and support patients taking Cerdelga® (eliglustat). The program covers topics such as:
Establishing your treatment routine with Cerdelga, including tips to help you take Cerdelga as prescribed by your doctor
Regular e-mail updates on topics important to people taking Cerdelga, including communicating with your health care team
E-magazines offering tips from Gaucher disease experts and stories from people who are living with Gaucher disease type 1
Mobile text messages (SMS) with helpful tips and medication reminders
Visit the Cerdelga patient website for additional information to help educate your patients and their families about Gaucher disease type 1 and treatment with Cerdelga.
The Gaucher Registry (sponsored by Sanofi Genzyme) is the world’s largest cooperative observational study on Gaucher disease. The International Collaborative Gaucher Group (ICGG) established the registry in 1991 as a longitudinal database tracking outcomes of routine clinical practice. All patients with a confirmed diagnosis of Gaucher disease are eligible for inclusion. By enrolling patients in the registry, participating physicians will receive patient-specific reports to monitor disease status.
Visit the Gaucher Registry to learn more.
This program was established in the US to provide Sanofi Genzyme’s therapies to eligible individuals who do not have health insurance or have inadequate coverage for treatment. It is considered a temporary solution until long-term coverage can be secured.
Qualified individuals with Gaucher disease type 1 whose physicians have recommended treatment with Cerdelga may be eligible for the Charitable Access Program. If a patient is ineligible for our program, their CareConnectPSS Case Manager will work with the patient and their health care providers to explore alternative coverage options.
A CareConnectPSS Case Manager will coordinate with you and your patient to obtain the necessary documentation, including a signed waiver, and keep you updated on the status of your patient’s application. Applications are reviewed on a monthly basis and are kept confidential by the Sanofi Genzyme Charitable Access Program.
To learn more about the Sanofi Genzyme Charitable Access Program or to request an application form, call 1-800-745-4447,
The Sanofi Genzyme Charitable Access Program may be discontinued at any time at the discretion of the Charitable Access Program Committee.
Treatment with Cerdelga is a covered benefit under most major insurance plans, as well as the Medicare and Medicaid programs. Before a patient begins treatment with Cerdelga, it may be necessary for the treating physician to obtain written confirmation of coverage for treatment from the patient’s insurance plan.
Please contact a CareConnectPSS Case Manager for assistance with the reimbursement process at 1‑800‑745‑4447, Option 3.